Publication

A qualitative investigation of reasoning behind decisions to decline participation in a research intervention: A study-within-a-trial

Dwyer, Christopher P.
Moses, Anusha
Rogers, Fionnuala M.
Casey, Dympna
Joyce, Robert
Hynes, Sinéad M.
Citation
Dwyer, Christopher P., Moses, Anusha, Rogers, Fionnuala M., Casey, Dympna, Joyce, Robert, & Hynes, Sinéad M. (2021). A qualitative investigation of reasoning behind decisions to decline participation in a research intervention: A study-within-a-trial. Journal of Health Psychology, 13591053211037736. doi:10.1177/13591053211037736
Abstract
The current study-within-a-trial explored individuals’ decisions to decline participation in research trialling a chronic illness-focused therapy (i.e. multiple sclerosis). Four themes were identified from seven semi-structured interviews with participation decliners and were confirmed by the host trial’s Patient & Public Involvement (PPI) panel: acknowledgement of the value of research; ‘fit’ of the study; misinterpretation of participant information; and ‘ignorance is bliss’ – discussed in light of theory and research. This study-within-a-trial extends research on trial recruitment and participation decline; while also suggesting that PPI can be utilised in both a practical and impactful manner.
Publisher
SAGE Publications
Publisher DOI
10.1177/13591053211037736
Rights
CC BY-NC-ND 3.0 IE