A qualitative investigation of reasoning behind decisions to decline participation in a research intervention: A study-within-a-trial
Dwyer, Christopher P. Moses, Anusha Rogers, Fionnuala M. Casey, Dympna Joyce, Robert Hynes, Sinéad M.
Dwyer, Christopher P.
Moses, Anusha
Rogers, Fionnuala M.
Casey, Dympna
Joyce, Robert
Hynes, Sinéad M.
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Publication Date
2021-08-06
Type
Article
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Citation
Dwyer, Christopher P., Moses, Anusha, Rogers, Fionnuala M., Casey, Dympna, Joyce, Robert, & Hynes, Sinéad M. (2021). A qualitative investigation of reasoning behind decisions to decline participation in a research intervention: A study-within-a-trial. Journal of Health Psychology, 13591053211037736. doi:10.1177/13591053211037736
Abstract
The current study-within-a-trial explored individuals’ decisions to decline participation in research trialling a chronic illness-focused therapy (i.e. multiple sclerosis). Four themes were identified from seven semi-structured interviews with participation decliners and were confirmed by the host trial’s Patient & Public Involvement (PPI) panel: acknowledgement of the value of research; ‘fit’ of the study; misinterpretation of participant information; and ‘ignorance is bliss’ – discussed in light of theory and research. This study-within-a-trial extends research on trial recruitment and participation decline; while also suggesting that PPI can be utilised in both a practical and impactful manner.
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Publisher
SAGE Publications
Publisher DOI
10.1177/13591053211037736
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CC BY-NC-ND 3.0 IE